Coming back !

It has been quite a while since I wrote here. Lots of things had happened and so many new discoveries.
We all have been through a lot of changes and all of them point to great new horizons.
The most significant event was getting sick all at the same time. We were like the ER of a hospital; it was so depressing and so sad. Nelson had it bad and his fever went up to a 103… needless to say we gave him no medicine and keep him under observation closely and monitoring his fever, appetite and his mood. He literally shut himself down to sleep mode, he slept so much and in such a fever that sometimes I got really scared: I wondered: I am doing the right thing? Should I just give him the antibiotics and get done with it? Should I stick to the program and the beliefs of our new doctor? Is this going to get worse? Can it actually get worse?. If he was not sleeping he was super needy and he only wanted me, a mami so sick that can hardly carry him around. He could not cope very well with his frustration and if he felt an ounce of what I felt, he was feeling pretty miserable. I was able to complaint; he was not, at least not verbally.
He did not eat that much and he drank just enough to keep himself hydrated… once the fever went away and his nasal discharge and cough disappear, he literally came back from the ashes like the Fenix bird and started to leap into new levels of communication. He said so many things and talked to us in sentences of 5 words and sometimes even more. He used them correctly and in the correct context, I was just in astonishment of what was happening and could not get enough of him being so talkative.
Since then he has been talking so much more and not only that he is been transitioning from activity to the next with less frustration and he is able to follow command more accurately. Evidently the Dr`s tent to say that is just my wishful thinking and my mother eyes that make all this assumptions and that in reality he might not be there were I keep telling them that he is, yet I believe that he is definitely leap into a new way of understanding and that what we are doing with the food is lifting that veil of confusion and the cloud that makes his condition what it is. His brain is getting cured and his Gut lining is getting cured, that i know for sure. I know I am not a Dr and I have no degree in Medicine or anything like that, but I know my son and I can see the changes and the progress. I have my own method of keeping track of his progress, I have my own rudimentary charts and notes that enable me to translate them into statistics, and from there I can see his progress in a mathematical (quantitative) way. Science evidently has their own scientific method and ways to measure progress and evidently is not the same I am doing here, yet every case is different and I apply what I know to my son`s progress.
I try to keep myself objective in all the process and remember that every little leap is a huge one for him, I cannot compare him with other kids in his condition or even with mainstream kids, I just measure what I see in him as progress and go from there.
The cooking has also evolve and grow into a well oiled machine. I can cook so many meals and so many new things that sometimes I am amazed of all the things I can do in 30 minutes or so. I have concluded that planning is the key element in cooking and definitely the people that get to see me almost every day is the people from the grocery store. Hehehehe I should get me a sleeping bag and sleep there…
Social Life? Not so much almost none, evidently going out to a party or to a restaurant is a lot of work and more importantly: situations I am not ready to tackle just yet, specifically because of the food that they (and us) cannot have. I do not mind to cook in advance to go out as a family, yet is another thing to cook and go out to a b-day party or so, where others will be enjoying all the food we cannot have and Nelson and Marie will be requesting to have those, and the answer will be no, and then he will have a super meltdown and then we will be responsible for ruin and spoiling the fun for everyone else, and then the snow ball effect will take place and things will get probably uncomfortable for us and others. We definitely do not want to spoil anybodies happiness especially on their b-day.
I guess I will find a way to make it work and we will socialize again. I keep thinking that is a great excuse for people to come to us an visit, yet it does not seem to be happening at all, I suppose people just find all this a little bit “too much” to handle. 
Nevertheless the discoveries and the amount of time we spend together as a family is making a difference too and even though we do not have play dates or b-day parties or a busy social life, we are healing and learning about Nelson and keeping him company in his journey. Is a long road ahead so we are just getting comfortable in our seats.

A New Year a New Challenge!

It has been a while, i have been so busy cooking and trying to organize all in a way that things do not fall apart. The holidays where nostalgic, maybe because of what can not be just yet! Nevertheless we celebrate and enjoy lots of time as a family, more than ever we are together like a pack of dogs were one goes the others follow. We have learn so much of what we need to do with Nelson and in this learning process we have also learn what we can not afford to do just yet. I wish we could find the right equilibrium that could keep us all afloat!
I will write more this week now the children will go back to school... i am wondering how that will go!
Love
Angela.